What's on the web on your pursuit, hobbies, interests and worries


<<< back to Leukodystrophy main page

Advancing Care for Children with White Matter Disease: Leukodystrophy Center


Advancing Care for Children with White Matter Disease: Leukodystrophy Center


The Leukodystrophy Center at Children's Hospital of Philadelphia provides comprehensive care for children with leukodystrophies.
 





More Leukodystrophy videos

Leukodystrophies (ALD, MLD, and GLD)


This is a brief video on three hereditary leukodystrophies: ALD, MLD, and GLD (Krabbe diease). I created this presentation with Google Slides. Image were ...
 

Krabbe Leukodystrophy (Before & After): Judson


Visit http://JudsonsLegacy.org to learn more about Judson and Krabbe disease and consider partnering with Judson's Legacy, a 501(c)3 nonprofit charity, ...
 

Leukodystrophies - Causes, Symptoms, Treatments & More…


See much more honest health information at: http://www.rehealthify.com/ Rehealthify offers reliable, up-to-date health information, anytime, anywhere, for free.
 

WHAT IS MLD? Metachromatic Leukodystrophy explained to all


http://yourekascience.org/portfolio/what-is-mld-metachromatic-leukodystrophy-explained-to-all/ What is MLD? Metachromatic Leukodystrophy is a devastating ...
 

Metachromatic leukodystrophy - Savannah's Journey


Metachromatic leukodystrophy is an inherited disorder characterized by the accumulation of fats called sulfatides in cells. This accumulation especially affects ...
 

The Effects of Krabbe Leukodystrophy


Learn more about Judson and Krabbe disease at http://JudsonsLegacy.org.
 

leukodystrophy


 

LEUKODYSTROPHY AWARENESS SLIDESHOW - September 2017!


NEW videos every Friday. The purpose of this video is to raise awareness of Leukodystrophies. September is Leukodystrophy Awareness Month. Learn more ...
 

Krabbe Leukodystrophy Raw/Uncut -- Judson


http://JudsonsLegacy.org This heart-wrenching video was taken just 10 days before Judson died. He is fully paralyzed, blind, and mute (he had been running, ...
 

Leukodystrophy in a nutshell!


This video is to explain in a nutshell what this disorder is. Please raise awearness for leukodystrophy. ABC 1 Australian Story - Cracking the Code - Episode 38 ...
 

Leukodystrophy awareness month 2017 Lily Belle's Journey


Lily was diagnosed with leukodystrophy (vanishing white matter) There is no cure or treatment, but there is hope! ❤ LIKE & SHARE to spread awareness! If you'd ...
 

ALD adrenal Leukodystrophy information (Zorenzo's oil)


Lorenzo Odone lost his battle with adrenoleukodsytrophy and passed away May 30, 2008 in his sleep at home in Fairfax, VA with both his father Augusto and life ...
 

Leukodystrophy/ The impact that a life limiting illness has on your faith.


It really does put your faith to the test ... and you find out that it works.\
 

In loving memory of Anaya - Krabbe Leukodystrophy awareness


Video made with her mothers permission | Krabbe Leukodystrophy is treatable if it is tested for at birth. Be sure to ask for supplemental newborn screening for ...
 

Lily Belle's Journey leukodystrophy awareness month 2015- vanishing white matter disease


This is why #whitemattermatters Lily was recently diagnosed with leukoencephalopathy, vanishing white matter. There is no cure or treatment! September is ...
 

Eliza Kate Williams


A video showing the progress of the disease MLD or Metachromatic Leukodystrophy.
 

About Leukodystrophy | Australian Leukodystrophy Support Group


What you need to know about Leukodystrophy. Doctor Michael Fahey describes the condition and how it affects the nervous system. Bob Wyborn tells his story ...
 

What is Krabbe Disease?


http://JudsonsLegacy.org This informational motion graphic explains the complicated elements of Krabbe (Krahb-A) Leukodystrophy to raise awareness and ...
 

Dealing With Leukodystrophy


Website http://brotherjohnspeaks.net.
 

Leukodystrophy Awareness 2016


 

Leukodystrophy


 

Leukodystrophy/ Parents of child with life limiting illness, talk about how she will die one day.


\
 

Imaging of Inherited White Matter Disease in Children


 

Long Walk for Leukodystrophy 2016


wheresjohn - John Olsen is a champion, walking diagonally across Australia (5500 km) to raise funds in support of those living with Leukodystrophy. His only life ...
 

Breakfast with Luke. Luke Parkes. Metachromatic Leukodystrophy. MLD


Video taken February 22 2013 soon after Luke's diagnosis. This shows clearly his dexterity and communication skills before the MLD took hold.
 

Metachromatic Leukodystrophy - USMLE Biochemistry webinar Case based lecture


MEDVIZZ - USMLE , PLAB , AMC , MCCQE , COMLEX , SLE , MRCP Metachromatic Leukodystrophy An autosomal recessive lysosomal storage disease caused ...
 

LEUKODYSTROPHY AWARENESS SLIDESHOW - FEBRUARY 2016


PREVIOUS VIDEO: http://leukodystrophy.purzuit.com/video/wXMivmmvMDI.html The purpose of this video is to raise awareness of Leukodystrophies. Learn more about ...
 

LEUKODYSTROPHY AWARENESS SLIDESHOW - SEPTEMBER 2016


PREVIOUS VIDEO: http://leukodystrophy.purzuit.com/video/aTdh9Cs8ClQ.html The purpose of this video is to raise awareness of Leukodystrophies. September is ...
 

Gene discovered for 4H leukodystrophy


Paediatric neurologist Dr. Genevieve Bernard talks about the disease 4H leukodystrophy and the new gene that was identified that is associated with the rare ...
 

Metachromatic leukodystrophy- Tigroid pattern


 

LEUKODYSTROPHY AWARENESS SLIDESHOW: SEPTEMBER 2016 - UPDATED VERSION!


PREVIOUS VIDEO: http://leukodystrophy.purzuit.com/video/b2hoxyWIU8A.html The purpose of this video is to raise awareness of Leukodystrophies. September is ...
 

Emma: Bringing Hope To The World. Krabbe's Leukodystrophy Disease


Krabbe disease is a rare, inherited degenerative disorder of the central and peripheral nervous systems. There is no cure for Krabbe disease. Infantile Krabbe ...
 

Leukodystrophy Expert Discusses H-ABC


Adeline Vanderver, MD, is an Attending Physician in the Division of Neurology, Program Director of the Leukodystrophy Center, and Jacob A. Kamens Endowed ...
 

2017 Leukodystrophy Care Network Video


Learn more about the important work of the Leukodystrophy Care Network, a Hunter's Hope initiative.
 

Tremors, Metachromatic Leukodystrophy and Primidone


Sam's tremors have greatly impeded him for quite some time now. Neurologist started him on Primidone twice daily and the results are pretty darn incredible!
 

Leukodystrophy say Shifa


 




<<< back to Leukodystrophy main page