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Leukodystrophy news

Network for families: DeKalb-based United Leukodystrophy Foundation celebrates 35 years

DeKalb Daily Chronicle - Oct 14, 2017
Clark was born with a duplication of the PLP1 gene on the X chromosome and at 3 months old, he was diagnosed with Pelizaeus-Merzbacher disease, a type of leukodystrophy. Typically, leukodsytrophies are genetically inherited. Clark's case is unusual ...

Local family looking for help in rare disease case

The Killeen Daily Herald - Oct 23, 2017
According to a GoFundMe page for Jeremiah, the toddler was recently diagnosed with leukodystrophy — a group of rare genetic disorders that affects the central nervous system by disrupting the growth or maintenance of the myelin sheath, which insulates ...

Clothing drive to honor 'Hollywood'

Portsmouth Daily Times - Nov 8, 2017
Andrew “Hollywood” Peck touched the hearts of thousands of people with his story as he fought bravely against a rare disease at only 10 years old. Hollywood suffered from Leukodystrophy, a vanishing white matter disease, but didn't let his illness stop ...

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Cat Globoid Cell Leukodystrophy (Krabbe Disease) of the Brain Microscope Slides


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Krabbe Leukodystrophy (Before & After): Judson

Visit http://JudsonsLegacy.org to learn more about Judson and Krabbe disease and consider partnering with Judson's Legacy, a 501(c)3 nonprofit charity, ...

Advancing Care for Children with White Matter Disease: Leukodystrophy Center

The Leukodystrophy Center at Children's Hospital of Philadelphia provides comprehensive care for children with leukodystrophies.

WHAT IS MLD? Metachromatic Leukodystrophy explained to all

http://yourekascience.org/portfolio/what-is-mld-metachromatic-leukodystrophy-explained-to-all/ What is MLD? Metachromatic Leukodystrophy is a devastating ...

Lily Belle's Journey leukodystrophy awareness month 2015- vanishing white matter disease

This is why #whitemattermatters Lily was recently diagnosed with leukoencephalopathy, vanishing white matter. There is no cure or treatment! September is ...

Is There A Cure For Leukodystrophy?

The treatment for alexander disease is symptomatic and supportive. Scientists are also researching whether replacing certain enzymes can help treat some ...